Families With Loved Ones Facing Rare Diseases Fight For Hope
One family finally discovered treatment for a rare condition that can help give patients more time to raise money for a cure.
![](https://ewscripps.brightspotcdn.com/92/8f/55db8e654d7d8b7ac2e40d7e46a4/1627940731-d5dd61.jpeg)
![](https://ewscripps.brightspotcdn.com/92/8f/55db8e654d7d8b7ac2e40d7e46a4/1627940731-d5dd61.jpeg)
Posted at
and last updated
Copyright 2024 Scripps Media, Inc. All rights reserved. This material may not be published, broadcast, rewritten, or redistributed.